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Global Patient Registry of Inherited Retinal Diseases

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研究单位: [1]Janssen Research & Development, LLC [2]University of Alabama Birmingham,Birmingham,Alabama,United States,35294 [3]University of Arkansas for Medical Sciences,Little Rock,Arkansas,United States,72205 [4]University of Southern California,Los Angeles,California,United States,90033 [5]University of Iowa,Iowa City,Iowa,United States,52242 [6]Ochsner Medical Center,New Orleans,Louisiana,United States,70121 [7]John Hopkins Hospital,Baltimore,Maryland,United States,212051832 [8]Univ of Michigan Medical Center,Ann Arbor,Michigan,United States,48105 [9]University Of Minnesota Medical Center,Minneapolis,Minnesota,United States,55455 [10]Cleveland Clinic,Cleveland,Ohio,United States,44195 [11]UPMC,Pittsburgh,Pennsylvania,United States,15213 [12]Retina Consultants of Texas,Bellaire,Texas,United States,77401 [13]Baylor College of Medicine,Houston,Texas,United States,77030 [14]University of Texas Houston,Houston,Texas,United States,77204 [15]Kepler Universitätsklinikum GmbH,Linz,Austria,4021 [16]Medizinische Universitat Wien,Vienna,Austria,A-1090 [17]INRET Clínica e Centro de Pesquisa,Belo Horizonte,Brazil,30150-270 [18]Instituto De Genetica Ocular,São Paulo,Brazil,04023-061 [19]Sunnybrook Health Sciences Center,Toronto,Ontario,Canada,M4N 3M5 [20]Beijing Tongren Hospital CMU,Beijing,China,100730 [21]Peking Union Medical College Hospital,Beijing,China,100730 [22]Eye and ENT Hospital of Fudan University,Shanghai,China,200031 [23]Shanghai Aier Eye Hospital,Shanghai,China,200336 [24]Rigshospitalet Glostrup,Glostrup,Denmark,2600 [25]CHU Montpellier,Montpellier,France,34295 [26]CHU Nantes,Nantes,France,F44093 [27]Centre Hospitalier National d''Ophtalmologie des Quinze-Vingts,Paris,France,75012 [28]Universitatsklinikum Bonn,Bonn,Germany,53127 [29]The Chaim Sheba Medical Center,Ramat Gan,Israel,52621 [30]Azienda Ospedaliero Universitaria Careggi,Firenze,Italy,50134 [31]Ospedale San Raffaele,Milano,Italy,20132 [32]ASST Santi Paolo e Carlo,Milano,Italy,20142 [33]IRCCS Fondazione G.B. Bietti per lo Studio e la Ricerca in Oftalmologia ONLUS,Roma,Italy,00198 [34]Seoul National University Bundang Hospital,Gyeonggi-do,Korea, Republic of,13620 [35]Severance Hospital,Seoul,Korea, Republic of,03722 [36]Samsung Medical Center,Seoul,Korea, Republic of,06351 [37]Hosp. Univ. Donostia,Donostia-San Sebastián,Spain,20014 [38]Hosp Univ Fund Jimenez Diaz,Madrid,Spain,28040 [39]Hosp. Univ. 12 de Octubre,Madrid,Spain,28041 [40]Hosp. Virgen Macarena,Sevilla,Spain,41009 [41]University Hospital Basel, Eye Clinic/Institute of Molecular and Clinical,Basel,Switzerland,4031 [42]University Hospital Wales,Cardiff,United Kingdom,CF244LU [43]University Hospital Southampton NHS Foundation Trust,Southampton,United Kingdom,SO166YD [44]Sunderland Eye Infirmary,Sunderland,United Kingdom,SR29HP

研究目的:
The purpose of this study is to better understand the natural history of Inherited Retinal Disease (IRD) and help inform patient management.

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