机构:[1]MACVIA‑France, Fondation Partenariale FMC VIA-LR, CHU Arnaud deVilleneuve, 371 Avenue du Doyen Gaston Giraud, 34295 Montpellier Cedex 5,France[2]INSERM U 1168, VIMA: Ageing and Chronic Diseases Epidemiological and Public Health Approaches, Villejuif, Université Versailles St-Quentin-enYvelines, UMR-S 1168, Montigny Le Bretonneux, France[3]Euforea, Brussels,Belgium[4]Humboldt‑Universität zu Berlin, Berlin Institute of Health,Comprehensive Allergy Center, Department of Dermatology and Allergy,Charité, Universitätsmedizin Berlin, Berlin, Germany[5]Medical ConsultingCzarlewski, Levallois, France[6]KYomed INNOV, Montpellier, France[7]Centerfor Research in Health Technology and Information Systems, Faculdade deMedicina da Universidade do Porto, Medida, Lda Porto, Portugal[8]UCIBIO,REQUINTE, Faculty of Pharmacy and Competence Center on Activeand Healthy Ageing, University of Porto (Porto4Ageing), Porto, Portugal[9]Faculty of Health Sciences and CICS – UBI, Health Sciences Research Centre,University of Beira Interior, Covilhã, Portugal[10]Allergy Center, CUF Descober‑tas Hospital, Lisbon, Portugal[11]Imunoalergologia, Centro HospitalarUniversitário de Coimbra and Faculty of Medicine, University of Coimbra,Coimbra, Portugal[12]Division for Health Innovation, Campania Regionand Federico II University Hospital Naples (R&D and DISMET), Naples, Italy[13]CIRFF, Federico II University, Naples, Italy[14]Personalized Medicine ClinicAsthma and Allergy, Humanitas Research Hospital, Humanitas University,Rozzano, Milan, Italy[15]SOS Allergology and Clinical Immunology, USL ToscanaCentro, Prato, Italy[16]Department of Medical Sciences, Allergy and ClinicalImmunology Unit, University of Torino & Mauriziano Hospital, Turin, Italy[17]Consortium of Pharmacies and Services COSAFER, Salerno, Italy[18]Unitof Geriatric Immunoallergology, University of Bari Medical School, Bari, Italy[19]Department of Medicine, Surgery and Dentistry “Scuola Medica Salernitana”,University of Salerno, Salerno, Italy[20]Department of Otorhinolaryngology,Amsterdam University Medical Centre (AMC), Amsterdam, The Netherlands[21]Department of Public Health and Primary Care, Leiden University MedicalCenter, Leiden, The Netherlands[22]ProAR – Nucleo de Excelencia em Asma,Federal University of Bahia, Vitória da Conquista, Brazil[23]WHO GARD PlanningGroup, Salvador, Brazil[24]Department of Internal Medicine and Allergic Clinicof Professor Polydoro Ernani de Sao, Thiago University Hospital, FederalUniversity of Santa Catarina (UFSC), Florianópolis, Brazil[25]Asthma ReferenceCenter, Escola Superior de Ciencias da Santa Casa de Misericordia de Vitoria,Vitória, Esperito Santo, Brazil[26]Center of Excellence in Asthma and Allergy,Médica Sur Clinical Foundation and Hospital, Mexico City, Mexico[27]HospitalGeneral Regional 1 “Dr Carlos Mc Gregor Sanchez Navarro” IMSS, Mexico City,Mexico[28]Allergist, Mexico City, Mexico[29]Clinic of Children’s Diseases,and Institute of Health Sciences Department of Public Health, VilniusUniversity Institute of Clinical Medicine, Vilnius, Lithuania[30]EuropeanAcademy of Paediatrics (EAP/UEMS-SP), Brussels, Belgium[31]Clinic of Infec‑tious, Chest Diseases, Dermatology and Allergology, Vilnius University, Vilnius,Lithuania[32]Clinic of Children’s Diseases, Faculty of Medicine, Vilnius University,Vilnius, Lithuania[33]Faculty of Medicine, Vilnius University, Vilnius, Lithuania[34]Epidemiology of Allergic and Respiratory Diseases, Department InstitutePierre Louis of Epidemiology and Public Health, INSERM, Sorbonne Université,Medical School Saint Antoine, Paris, France[35]Department of Geriatrics,Montpellier University Hospital, Montpellier, France[36]EA 2991, Euromov,University Montpellier, Montpellier, France[37]CHU Dijon, Dijon, France[38]Allergist, La Rochelle, France[39]Sleep Unit, Department of Neurology,Hôpital Gui-de-Chauliac Montpellier, Montpellier, France[40]Inserm U1061,Montpellier, France[41]UPRES EA220, Pôle des Maladies des Voies Respiratoires,Hôpital Foch, Université Paris-Saclay, Suresnes, France[42]Allergist, Reims,France[43]Laboratoire HP2, Grenoble, INSERM, U1042, Université GrenobleAlpes, Grenoble, France[44]CHU de Grenoble, Grenoble, France[45]AllergyDepartment, Pasteur Institute, Paris, France[46]Conseil Général de l’EconomieMinistère de l’Economie, de l’Industrie et du Numérique, Paris, France[47]Pneumologie et Soins Intensifs Respiratoires, Hôpitaux Universitaires Paris,Centre Hôpital Cochin, Paris, France[48]Association Asthme et Allergie, Paris,France[49]Allergy Unit, Department of Dermatology, University Hospitalof Zurich, Zurich, Switzerland[50]Division of Internal Medicine, Asthmaand Allergy, Barlicki University Hospital, Medical University of Lodz, Lodz,Poland[51]Department of Prevention of Envinronmental Hazards and Allergol‑ogy, Medical University of Warsaw, Warsaw, Poland[52]ISGlobAL, Centrefor Research in Environmental Epidemiology (CREAL), Barcelona, Spain[53]IMIM(Hospital del Mar Research Institute), Barcelona, Spain[54]CIBER Epidemiologíay Salud Pública (CIBERESP), Barcelona, Spain[55]Universitat Pompeu Fabra(UPF), Barcelona, Spain[56]Allergy Section, Department of Internal Medicine,Hospital Vall ‘dHebron & ARADyAL Research Network, Barcelona, Spain[57]Rhinology Unit and Smell Clinic, ENT Department, Hospital Clínic, Universityof Barcelona, Barcelona, Spain[58]Clinical and Experimental RespiratoryImmunoallergy, IDIBAPS, CIBERES, University of Barcelona, Barcelona, Spain[59]Asthma UK Centre for Applied Research, The Usher Institute of PopulationHealth Sciences and Informatics, The University of Edinburgh, Edinburgh, UK[60]Honorary Clinical Research Fellow, Allergy and Respiratory Research Group,Usher Institute of Population Health Sciences and Informatics, Medical School,University of Edinburgh, Edinburgh, UK[61]The Usher Institute of PopulationHealth Sciences and Informatics, The University of Edinburgh, Edinburgh, UK[62]Asthma UK, Mansell Street, London, UK[63]International Primary CareRespiratory Group IPCRG, Aberdeen, Scotland, UK[64]Department of Otolaryn‑gology, Head and Neck Surgery, University of Mainz, Mainz, Germany[65]Centerfor Rhinology and Allergology, Wiesbaden, Germany[66]Departmentof Otorhinolaryngology, Head and Neck Surgery, Section of Rhinologyand Allergy, University Hospital Marburg, Phillipps-Universität Marburg,Marburg, Germany[67]Corporate Member of Freie Universität Berlin,Humboldt‑Uniersität zu Berlin, Charité - Universitätsmedizin Berlin, Berlin,Germany[68]Berlin Institute of Health, Comprehensive Allergy‑Centre,Department of Dermatology and Allergy, Member of GA2LEN, Berlin,Germany[69]Institute of Medical Statistics, and Computational Biology, MedicalFaculty, University of Cologne, Cologne, Germany[70]CRI-Clinical ResearchInternational-Ltd, Hamburg, Germany[71]Department of Internal Medicine,Medical University of Graz, Graz, Austria[72]Department of ENT, MedicalUniversity of Graz, Graz, Austria[73]Skin and Allergy Hospital, Helsinki UniversityHospital, University of Helsinki, Helsinki, Finland[74]Association of FinnishPharmacies, Helsinki, Finland[75]Department of Lung Diseases and ClinicalImmunology, Terveystalo Allergy Clinic, University of Turku, Turku, Finland[76]FILHA, Finnish Lung Association, Helsinki, Finland[77]Departmentof Pulmonary Diseases, Cerrahpasa Faculty of Medicine, Istanbul UniversityCerrahpasa, Istambul, Turkey[78]Department of Pulmonary Diseases, Facultyof Medicine, Celal Bayar University, Manisa, Turkey[79]Division of Infection,Immunity and Respiratory Medicine, Royal Manchester Children’s Hospital,University of Manchester, Manchester, UK[80]Allergy Department, 2ndPediatric Clinic, Athens General Children’s Hospital “P&A Kyriakou”, Universityof Athens, Athens, Greece[81]Department of Otorhinolaryngology, Universityof Crete School of Medicine, Heraklion, Greece[82]Health Planning Unit,Department of Social Medicine, Faculty of Medicine, University of Crete, Crete,Greece[83]University of Sydney and Woolcock Emphysema Centre and LocalHealth District, Woolcock Institute of Medical Research, Glebe, NSW, Australia[84]Department of Allergy, Immunology and Respiratory Medicine, AlfredHospital and Central Clinical School, Monash University, Melbourne, VIC,Australia[85]Department of Immunology, Monash University, Melbourne, VIC,Australia[86]Servicio de Alergia e Immunologia, Clinica Santa Isabel, BuenosAires, Argentina[87]Director of Center of Allergy, Immunology and RespiratoryDiseases, Santa Fe, Argentina Center for Allergy and Immunology, Santa Fe,Argentina[88]Universidad Católica de Córdoba, Córdoba, Argentina[89]Department of Clinical Science and Education, Södersjukhuset, KarolinskaInstitutet, Stockholm, Sweden[90]Sachs’ Children and Youth Hospital,Södersjukhuset, Stockholm and Institute of Environmental Medicine,Karolinska Institutet, Stockholm, Sweden[91]Centre for Clinical ResearchSörmland, Uppsala University, Eskilstuna, Sweden[92]Upper Airways ResearchLaboratory, ENT Dept, Ghent University Hospital, Ghent, Belgium[93]Depart‑ment of Otorhinolaryngology, Univ Hospitals Leuven, Louvain, Belgium[94]Academic Medical Center, Univ of Amsterdam, Amsterdam, The Nether‑lands[95]Department of Respiratory Medicine, Ghent University Hospital,Ghent, Belgium[96]EFA European Federation of Allergy and Airways DiseasesPatients’ Associations, Brussels, Belgium[97]Department of Dermatologyand Allergy Centre, Odense University Hospital, Odense Research Centerfor Anaphylaxis (ORCA), Odense, Denmark[98]Department of Medicine, ClinicalImmunology and Allergy, McMaster University, Hamilton, ON, Canada[99]Quebec Heart and Lung Institute, Laval University, Québec City, QC, Canada[100]Clinical Medecine, Laval’s University, Quebec City, Canada[101]MedecineDepartment, Hôpital de la Malbaie, Quebec, Canada[102]Department of HealthResearch Methods, Evidence and Impact, Division of Immunology and Allergy,McMaster University, Hamilton, ON, Canada[103]Department of RespiratoryMedicine, University Hospital Olomouc, Olomouc, Czech Republic[104]Peer‑code BV, Geldermalsen, The Netherlands[105]Faculty of Medicine, TransylvaniaUniversity, Brasov, Romania[106]Department of Allergy and Immunology,Hospital Quirón Bizkaia, Erandio, Spain[107]iQ4U Consultants Ltd, London, UK[108]Division of Allergy/Immunology, University of South Florida, Tampa, USA[109]Section of Allergy and Immunology, Saint Louis University Schoolof Medicine, Saint Louis, MO, USA[110]Clinical Reserch Center for Allergyand Rheumatology, Sagamihara National Hospital, Sagamihara, Japan[111]Medical Communications Consultant, MedScript Ltd (Ireland & New Zealand), Dundalk, Ireland[112]Honorary Research Fellow, OPC, Cambridge, UK[113]Johns Hopkins School of Medicine, Baltimore, MD, USA[114]Departmentof Otorhinolaryngology, Chiba University Hospital, Chiba, Japan[115]Nova Southeastern University, Fort Lauderdale, FL, USA
AimsMobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases.MethodsMASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients.StakeholdersInclude patients, health care professionals (pharmacists and physicians), authorities, patient's associations, private and public sectors.ResultsMASK is deployed in 23 countries and 17 languages. 26,000 users have registered.EU grants (2018)MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour).Lessons learnt(i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.
第一作者机构:[1]MACVIA‑France, Fondation Partenariale FMC VIA-LR, CHU Arnaud deVilleneuve, 371 Avenue du Doyen Gaston Giraud, 34295 Montpellier Cedex 5,France[2]INSERM U 1168, VIMA: Ageing and Chronic Diseases Epidemiological and Public Health Approaches, Villejuif, Université Versailles St-Quentin-enYvelines, UMR-S 1168, Montigny Le Bretonneux, France[3]Euforea, Brussels,Belgium[4]Humboldt‑Universität zu Berlin, Berlin Institute of Health,Comprehensive Allergy Center, Department of Dermatology and Allergy,Charité, Universitätsmedizin Berlin, Berlin, Germany
通讯作者:
通讯机构:[1]MACVIA‑France, Fondation Partenariale FMC VIA-LR, CHU Arnaud deVilleneuve, 371 Avenue du Doyen Gaston Giraud, 34295 Montpellier Cedex 5,France[2]INSERM U 1168, VIMA: Ageing and Chronic Diseases Epidemiological and Public Health Approaches, Villejuif, Université Versailles St-Quentin-enYvelines, UMR-S 1168, Montigny Le Bretonneux, France[3]Euforea, Brussels,Belgium[4]Humboldt‑Universität zu Berlin, Berlin Institute of Health,Comprehensive Allergy Center, Department of Dermatology and Allergy,Charité, Universitätsmedizin Berlin, Berlin, Germany
推荐引用方式(GB/T 7714):
J. Bousquet,A. Bedbrook,W. Czarlewski,et al.Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma[J].CLINICAL AND TRANSLATIONAL ALLERGY.2019,9:doi:10.1186/s13601-019-0252-0.
APA:
J. Bousquet,A. Bedbrook,W. Czarlewski,G. L. Onorato,S. Arnavielhe...&D. V. Wallace.(2019).Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma.CLINICAL AND TRANSLATIONAL ALLERGY,9,
MLA:
J. Bousquet,et al."Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma".CLINICAL AND TRANSLATIONAL ALLERGY 9.(2019)